Series educates on Long Term Care

May 10th, 2013

By Julie Alexander, Lead Independent Living Services Coordinator

 

During the month of April and into May, the IndependenceFirst Long Term Care Advocacy Team presented the last two sessions in our Long Term Care Brown Bag Lunch Series.

 

On April 26, Hope Lloyd and Elizabeth Mamerow from Disability Rights Wisconsin (DRW) spoke about the DRW Long Term Care Ombudsman Program. They described the assistance DRW can provide in appealing denials or mediating issues with Family Care providers, as well as how to work with the Include, Respect, I Self Direct (IRIS) program and the assistance DRW can provide when people are having difficulties. Twenty-nine community members with and without disabilities joined us to learn about options for navigating these programs to get their needs met and maintain their independence.

 

 Attendee in group asking question of presenter

 

On May 3, Sue Gadacz from the Milwaukee County Behavioral Health Division gave a presentation on “Wisconsin’s Perspective on Health Care Reform.” About 30 people with and without disabilities heard this excellent presentation and gained many insights on how Wisconsin and the Milwaukee County Behavioral Health Division in particular will be affected by the Affordable Care Act (ACA) when some of the pieces of this legislation are implemented in January 2014. The audience also learned how Governor Walker’s proposed budget would impact services and options for people with disabilities in our state.

 

All in all people enjoyed attending and learned a lot from our Long Term Care Brown Bag Lunch Series. We were privileged to offer CEUs for this series. The Long Term Care Advocacy Team will work on future Brown Bag Lunch offerings in the coming months. Stay tuned.

 

 

Reflecting on my time at IndependenceFirst

May 7th, 2013

By Tamara Agger, PR/Marketing Intern

 

One of my favorite things to do in life (probably thanks, at least in part, to my love of reading) is to jump into experiences that are new and different from what I already know. I find that these experiences—like my six months studying abroad in Chile—put me into contact with so many interesting places, people and cultures, and teach me to expand the horizons of my understanding. When I was hired as the PR/Marketing Intern for IndependenceFirst in January, I knew I was jumping into something yet again—this time, into the community and organizational culture of IndependenceFirst. And I definitely have not been disappointed—in just a few short months, I’ve a learned a lot! To give you a glimpse of what some of my “big takeaways” from this experience will be, here are three of the most important things I’ve learned working at IndependenceFirst:

 

  1. Words matter. One of the reasons I chose to be an English major is because I appreciate the incredible power that language has to shape our lives. Before coming to IndependenceFirst, I knew that there were mean or insensitive things that a person shouldn’t say regarding disability. But I was still unsure about which words were okay to use. Now I can feel comfortable using People First Language or asking about someone’s preference in a considerate way. Now I feel like I can use my words to empower others, which in turn makes me feel empowered.

 

  1. People with disabilities are just that—people with disabilities. Too often, our societal responses to disability focus too much on a person’s disability and too little on their humanity. Calling people with disabilities “inspirational,” for example, undercuts their achievements and puts them on a pedestal. Saying that they “suffer from” their disability treats them as objects of pity. People with disabilities want the same things out of life as people without disabilities.  They are citizens and community members, and they deserve to be treated the same as any other member of the community. 

 

  1. Disability history is our history, and it’s fascinating. Over the past few months, I’ve had the opportunity to research a lot of disability history-related topics. Did you know, for example, that the first curb cuts in the U.S. were implemented in Kalamazoo, Michigan in the 1940s? There’s a lot of great stuff out there to discover! At the top of my summer reading list, in fact, is a book I recently found out about called A Disability History of the United States. (Did I mention I’m a bit of a history geek, too?)

 

 tamara

 

Working at IndependenceFirst has been a very rewarding experience for me, both personally and professionally. Thank you for being my partners in learning, and I hope that some part of what I’ve written here resonated with your own life and experiences. I wish you the best!

 

Recycle, Reuse and Repurpose

May 3rd, 2013

By Diana Sullivan, Disability Rights & Access Specialist

 

This month, as the weather warms up , we’re usually pretty happy to say goodbye to a long winter that has fooled us more than once.  The birds start singing at 4:00 in the morning these days, and often wake me up with their sweet melodic songs. It’s a time when we have a greater appreciation for the awesome transformation of the seasons – especially when we see the budding of our tree-lined streets, or smell the hyacinths in bloom. We recently celebrated Earth Week and we see people raking old leaves, and cleaning up wind-blown paper, plastic and all kinds of other stuff to make way for a cleaner and nicer-looking environment.

 

Here at IndependenceFirst we have a Green Team that is interested in helping our organization understand that it’s important to make the lightest footprint of consumption – to try to keep our waste and energy at a minimum. The city helps us out too. They provide recycling bins so that we can limit the waste that goes into landfills. They also provide drop-off places that will take more difficult waste like oil, paint and other “hard to get rid of” stuff.

 

One recycling program to help you at IndependenceFirst is our Computer Recycling Program – we take donated laptops, computers and computer accessories, and follow a strict identity theft prevention protocol including shredding hard drives.  Then, we provide people with disabilities who otherwise couldn’t afford to purchase a PC with a computer and training options. Keep it in mind!

 

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 (Image Courtesty of Stu Nami)

 

Also, recently IndependenceFirst merged with another organization that is dedicated to recycling mobility and other equipment that people with disabilities use. The organization used to be called The Wheelchair Recycling Program. It’s now the IndependenceFirst Mobility Store. People donate their used medical equipment and, through a collaboration with a state prison program, the Mobility Store brings wheelchairs, scooters, rollators and other equipment close to their original shine and usefulness. People are able to purchase needed items for a fraction of the cost of new equipment. It’s a great way to save some money and also space on this land!

 

As I was picking up our parking lot last week, I remembered some of the things that our family has done to help keep that landfill footprint small. Our daughter Alison was fed by G-tube. Every day I would open up a plastic bag that contained the bag that we poured a can of her feeding formula and fresh carrot juice into. I kept each of the plastic bags and I gave them to a neighbor, who used them to clean up after her family’s dog. Eventually, of course, the plastic bags did go to the landfill, but at least no new bags were used for that purpose. After Ali died, her leopard skin motif wheelchair and other equipment were donated so that they could be used again and maybe recycled many times. I even considered giving unused tubing and other supplies to an artist co-op to see if anyone there might find a creative use for it.  Why not? There seem to be so many ways that we can reuse, repurpose and recycle the items we use in our daily lives. 

 

Do you repurpose, reuse or donate your medical equipment and supplies? Do you have some recycling or repurposing ideas that you’d care to share with folks who read this blog? Write us back and let’s share ideas about how we can be proactive in our efforts to reduce our landfill footprint and give Mother Earth a little break. She’s had to keep it together for a really long time. Think of it as a Mother’s Day gift of sorts.

 

Be part of a wonderful evening at Night for Independence

May 1st, 2013

 

Invite Image - see text below

 

To highlight and celebrate the contributions of people with disabilities and to support our work as an advocate and resource, IndependenceFirst will hold our annual Night for Independence, formerly known as the POWER DINNER, at Potawatomi Bingo Casino, 1721 W. Canal St. in Milwaukee, on May 22.

 

Josh George, a three-time Paralympian who has also won the Chicago Marathon three times, will be our keynote speaker this year. In between training, traveling and competing, George has also blogged for the New York Times, helped launch IntelliWheels, Inc., advocated for causes and been impacted by people he’s met all over the world.

 

This year’s Night for Independence is a not-to-be-missed evening including a silent auction prior to the evening’s dinner and program. Our silent auction this year will feature a wide variety of experiences and items—there will be something for everyone!

 

Night for Independence Schedule of Events:

5 p.m.  Registration and Silent Auction

7 p.m.  Dinner and Keynote

 

Tickets are $100 each or $1250 for a corporate table of 8. For more information, please call 414-291-7520 V/TTY, email Events@IndependenceFirst.org or visit independencefirst.org. We hope you will join us for this insightful and celebratory evening in support of IndependenceFirst.

 

 

April is National Fair Housing Month

April 26th, 2013

 By Brian Peters, Housing Policy Advocate

 

The U.S. Department of Housing and Urban Development (HUD) has kicked off April’s National Fair Housing Month with an announcement and a video (that is captioned).

 

The Fair Housing Act was passed in 1968, and amended in 1988 to, among other things, add people with disabilities as a protected class. Being part of a protected class means that you cannot be discriminated against because you are a member of that group. For example, a landlord cannot refuse to rent to you because you have a disability. However the landlord can refuse to rent to you for other reasons, such as a bad rental history. The amendment also added minimum accessibility requirements for new construction multi-family housing. 

 

 hseequal

 

Wisconsin also has an Open Housing Law, which adds some protected classes and certain accessibility requirements for buildings being rehabilitated or renovated.

 

If you have a housing discrimination complaint, it can be directed to the Metropolitan Milwaukee Fair Housing Council, the State of Wisconsin Department of Workforce Development (online forms in English and Spanish) and HUD.

 

Please note that you can also file landlord-tenant complaints through the Wisconsin Department of Agriculture, Trade and Consumer Protection.

 

Lunches an opportunity to learn more about long term care

April 18th, 2013

By Julie Alexander, Lead Independent Living Services Coordinator

 

On April 12, the Long Term Care Consumer Advocacy Team presented the first of three sessions that are part of a series of Brown Bag Lunch events focusing on different areas of Long Term Care. The presentation, entitled “Benefits, Funding Sources & Accessing Long Term Care Services,” was given by Kathy Altman, the Benefits and Employment Program Director at IndependenceFirst, and Ginger Reimer, Vice President of the Personal Assistance Services department at IndependenceFirst. Kathy focused on different options for accessing the Medicaid program and becoming eligible for Long Term Care. Ginger focused on different services offered in the Family Care, IRIS and Partnership Programs in Wisconsin.

 

 woman giving presentation

 

Twenty-nine people attended the presentation, including consumers, personal care workers, individuals from Milwaukee County and Family Care CMUs, as well as a number of individuals who work for other agencies that assist individuals with disabilities in the Milwaukee area. Attendees reported that they learned a lot from the speakers and benefited significantly from coming to this presentation.

 

Our next presentation, “Overcoming Barriers to Obtaining Long Term Care & Connecting with Advocacy Resources,” will take place on April 26 from noon to 1:30 p.m. at IndependenceFirst, 540 S. 1st St in Milwaukee. The session will be presented by Hope Lloyd and Elizabeth Mamerow from Disability Rights Wisconsin. We are looking forward to another excellent presentation that will assist consumers, providers and the community at large in understanding and working through the Long Term Care system.

 

We will be completing our Brown Bag Lunch Series on May 3 when Susan Gadacz of Milwaukee County Behavioral Health Division will speak on “Wisconsin’s Perspective on Health Care Reform.” This will be an informative presentation focusing on national health care legislation that will affect all of us in the coming years. We will learn how Wisconsin is going to coordinate its services in light of this national legislation. This session will be held at IndependenceFirst, 540 S. 1st St. in Milwaukee, from noon to 1:30 p.m. on May 3.

 

All interested parties are welcome to attend the upcoming sessions. Please RSVP to me at jalexander@independencefirst.org or (414) 226-8378 V/Relay.  For more information, view the series flyer.

 

Proposed legislation could cut drug costs

April 17th, 2013

By Julie Alexander, Lead Coordinator of Independent Living Services

 

Yesterday U.S. Senator Tammy Baldwin and 18 other U.S. Senators introduced legislation that would significantly reduce the deficit, protect health care for seniors and people with disabilities and reduce Medicare Part D drug costs. It is estimated that this bill would save $141.2 billion by eliminating a special deal that has allowed brand name prescription drug manufacturers to charge Medicare higher costs for prescription drugs.

 

 

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Experts indicate that this bill will require drug companies to provide rebates to the federal government for prescription drugs used by people who have both Medicare and Medicaid. This would assist individuals of all ages with disabilities by lowering the cost of their medicines. More details will follow as additional information is disseminated about this proposed legislation.

 

 

Hearings offer opportunity for advocacy

April 9th, 2013

By Philip Corona, Independent Living Coordinator

 

ADVOCACY is one of our core services, so we think that everyone should have the chance to express their opinions to elected officials when given the opportunity. One such opportunity is attending one of the Joint Finance Committee listening sessions and having your voice be heard. If you haven’t already attended one of the hearings in your area, here are the remaining statewide dates and locations: 

 

 

Wednesday, April 10th 10:00 a.m. – 5:00 p.m.

Kalahari Resort

Suites 2 and 7 (Main Level)

1305 Kalahari Drive

Wisconsin Dells, WI 53965

 

Thursday, April 18th 10:00 a.m. – 5:00 p.m.

Baldwin-WoodvilleHigh School Auditorium

1000 13th Avenue

Baldwin, WI54002

 

 

Remember, if you can’t attend, you can always submit your comments to the Budget Committee by writing to: budgetcomments@legis.wisconsin.gov.

 

 

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Lift your voices and be heard. It is important to let the Joint Finance Committee know how important the issues that affect you and your family members and friends are. The link to the full proposed budget as it is now can be found at http://www.doa.state.wi.us/debf/execbudget.asp?locid=166 for your reference. You may want to consider the 10% cut to transportation, keeping the transit dollars in the dedicated Transportation Fund, Family Care expansion and adequate funding for it, mental health support, and/or Medicaid Expansion with respect to disability issues or impact. However, it’s up to you to express your own opinions to your elected officials and have your voice be heard on the issues that are most important to you.

 

 

 

Learn about and avoid mortgage rescue scams

April 4th, 2013

By Bethany Sanchez, Metropolitan Milwaukee Fair Housing Council

 

“Rescue” scams come in many forms.  Some foreclosure-related scams to beware of:

 

- The scam artist tells you that he can negotiate a deal with your lender to save your home—if you pay a fee. Once you pay, the scam artist takes off with your money.

- You are asked to make all your mortgage payments directly to the scam artists while they negotiate with the lender. After collecting your payments for a few months, the scammer disappears with your money and you still owe the lender.

- You think you’re signing documents for a new loan to make your existing mortgage current—but instead, you have given unscrupulous individuals ownership (the deed) to your home.

- You surrender the title to your home as part of a deal that allows you to remain in your home as a renter, and buy it back later. But you lose all rights, and the scammer takes the equity in your home.

- A scam artist offers to find a buyer for your home, but only if you sign over the deed and move out. Once you transfer the deed, the scam artist rents out the home and pockets the proceeds while the foreclosure continues. You lose your home—and you’re still responsible for the unpaid mortgage.

- The scam artist promises to negotiate with your lender or to get refinancing on your behalf for a fee. But instead, he pockets the fee and files a bankruptcy case in your name. You could lose the money as well as your home—and end up with a bankruptcy filing that ruins your credit history.

 

 mmfhc

 

Tips to avoid mortgage rescue scams and mortgage fraud:

 

- Avoid anyone who asks for money to help you modify your loan. Scammers often take the form of a loss mitigation company, a bankruptcy lawyer, a real estate broker, and/or someone who uses government logos and offers “special programs” to appear that they can offer legitimate help.

- Instead, find a nonprofit housing counselor who will help you for free at www.takerootmilwaukee.org, www.hud.gov or www.findaforeclosurecounselor.org.

- Beware of offers or promises that seem too good to be true. Be especially wary of guaranteed results.

- Do not give away your Power of Attorney.

- Do not be pressured to sign any contract. Take your time to review all documents thoroughly.

- Don’t sign away ownership of your house (don’t transfer the deed) to anyone without advice from a nonprofit housing counselor or a reputable, experienced real estate lawyer.

- State and federal laws prohibit companies from charging for foreclosure prevention or credit repair services until the services have been fully performed. Collecting your money first is illegal.

- Filing for bankruptcy will not necessarily save your primary home from foreclosure.

- If your English-speaking skills are limited, bring your own trusted translator to any financial or homeownership negotiations.

- Before doing business with any firm, check the company with your state Attorney General, local consumer protection agency, and the Better Business Bureau. Firms doing this type of business in Wisconsin are required to be licensed by the State Department of Financial Institutions. Check the license. Or call the Metropolitan Milwaukee Fair Housing Council and we will check for you.

 

If you suspect that you have been approached by a scammer, please call the

Metropolitan Milwaukee Fair Housing Council, a nonprofit agency that will help you – for free!

Call (414) 278-1240, or from outside of Milwaukee County, call tollfree:(877)647-3247

 

 

Reminder: speak up for transit on Thursday

April 1st, 2013

By Autumn Misko, Resource Specialist

 

Currently, the state budget is being worked on and there are many parts of the budget that will impact people with disabilities’ abilities to be independent.

 

Below, please find an action alert to inform people of the important actions they can take to ensure that there are reliable and affordable transportation options for people with disabilities in Wisconsin.

 

This week Thursday, April 4, is the Joint Committee on Finance Hearing at Greendale High School (details below). This meeting is an important time for the public to weigh in on the proposed budget. Please attend! If you have questions, please contact me, Autumn Misko, at amisko@independencefirst.org or at (414) 291-7520 (Voice/TTY). 

 

Woman sharing story at Dec. Transit Listening Session

 

Wisconsin Transit Crisis

Call to Action

 

The Governor’s proposed state budget will lead to significant cuts in public transit statewide. It is crucial to let your state legislators know the significance of transit to you, others who rely on public transit and to Wisconsin as a whole.

 

How can you help?

 

Share Your Story

Please print out and complete the story form – http://midwestadvocates.org/assets/resources/TELL_YOUR_TRANSIT_STORY_jan_13.pdf – and share why public transit is important to you. Then return the form to Community Response to the Transit Crisis c/o Midwest Environmental Advocates: advocate@midwestadvocates.org (preferable) or 612 W. Main St., #312 Madison, WI 53703.

 

Attend and Provide Testimony at the Joint Committee on Finance Hearings

Thursday, April 4th 10:00 a.m. – 6:00 p.m.

Greendale High School Auditorium

6801 Southway

Greendale, WI 53129

 

Monday, April 8th 10:00 a.m. – 5:00 p.m.

Lambeau Field

Legends Club Room – 4th Level

Lambeau Field Atrium

1285 Lombardi Avenue

Green Bay, WI 54304

 

Wednesday, April 10th 10:00 a.m. – 5:00 p.m.

Crystal Grand Music Theatre

430 West Munroe Avenue (HWY 23)

Lake Delton, WI 53940

 

Thursday, April 18th 10:00 a.m. – 5:00 p.m.

Baldwin-Woodville High School Auditorium

1000 13th Avenue

Baldwin, WI 54002

 

Contact the Governor and Your State Representatives

Contact Governor Walker at govgeneral@wisconsin.gov or (608) 266-1212 V/Relay.

 

Go to http://legis.wisconsin.gov/Pages/waml.aspx to locate your representatives.

 

Talking Points

Keep public transit in the segregated transportation fund

Public transit has been facing funding challenges and moving public transit out of the Transportation Fund would drastically complicate and worsen this situation. The segregated transportation fund provides a more stable funding stream for this vital service. Many people with disabilities, older adults and individuals with low incomes depend on public transit to get to work, medical appointments, school, etc. Moving public transit to the General Fund would make funding public transit even more difficult and unpredictable. 

 

Restore the cut made to public transit state operating assistance

Public transit in Wisconsin will face further cuts to service if funding is not restored. Both fixed route and paratransit services will be impacted, which could result in people being unable to access transportation. Restoring this cut from the 2011-2013 State Budget would help to maintain current transit.  

 

Stay in Touch

Like “Community Response to the Transit Crisis” on Facebook to post and receive important information.

 


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